The 9th International Symposium on NBIA took place in October 2024 in Istanbul, Türkiye. The event was a big success and you find all the information on the website.

You can additionally download the booklet of the symposium here.

Congratulation to the poster awards laureates of the 9th International symposium on NBIA, 17-19 October 2024 On behalf of NBIA Suisse, I am happy to express my heartfelt congratulations to them both, the two poster awards Laureates of the « 9th International Symposium on NBIA, 17-19 October 2024 Istanbul/ Turkey;

Mrs. Eleanor Attridgey for «Characterising The Molecular Mechanisms Of WIPI2 And WIPI4 Mutations In BPAN And Neurodevelopmental Disorders» &

Mr. Ibrahim Kamaci  for «Clinical profile of Kufer-Rakeb Syndrome and evaluation of quantitative Sensitivity analysis»

The price of the Poster Award is  500€, of each.

We hope to hear from their future successful research on NBIA, wish them both a brilliant scientific career and all the best.

Fatemeh Mollet, in the name of the NBIA Suisse board

The Swiss Registry for Rare Diseases (SRSK) collects information on people with
a rare disease throughout Switzerland. The project aims to reduce the frequency of
describe diseases in Switzerland, promote research on rare diseases, and
enable networking between those affected and professionals. Important
Information about the SRSK and all the documents required for registration can be found here.

The 8th International Symposium on NBIA will take place from 13 to 15 October 2022 in Lausanne, Switzerland.
For three days, scientists and medical professionals from all over the world are invited to share their work and develop new strategies. Find out what's new in NBIA research! Share your experiences treating NBIA and join discussion boards!

You can find the current program here.

More information about the event can be found here.

In view of the lasting COVID-19 pandemic and respective restrictions for intercontinental travel, the organizing committee of the 8th International Symposium on NBIA and Related Disorders postpones the conference in  Lausanne/Switzerland to October 13-15 2022.

We keep you posted on this website with respective updates and information about the registration process.

We’d like to thank our supporting translators in the different languages:

For French: Elena Urbanovici and Dr. Paul Duvoisin

For German and English: Dr. Roland Jakob Roetne

For Persian: Miss Parvaneh Hojat خانم پروانه حجت

Due to the coronavirus epidemic, we had to change plans regarding the 7th international symposium on NBIA & related disorders which was planned to be held Oct 1-3, 2020 in Lausanne, Switzerland.

Instead of this symposium, we will hold a virtual meeting from Sept 30 – Oct 3, 2020. Speakers will be approached separately, and a website with more information and registration will be launched in August.

In addition, we rescheduled the live meeting in Lausanne to take place Oct 14-16, 2021. More information will be disseminated in due time.

We hope for your understanding!

In the past years several international family conferences took place all over the world:

• NBIA Disorders Association family conference 2021 (virtual)
• NBIA Disorders Association family conference 2019 in Charleston (USA)
• AISNAF family conference 2019 in Rimini (Italy)
• Hoffnungsbaum family conference 2018 in Dusseldorf (Germany)
• NBIA Disorders Association family conference 2017 in Chicago (USA)
• NBIA Disorders Association family conference 2015 in Minneapolis (USA)

Information about upcoming international family conferences will be published on our website

We are about to rework our homepage. The contents in german, french and persian will soon be published.