The Swiss Registry for Rare Diseases (SRSK) collects information on people with
a rare disease throughout Switzerland. The project aims to reduce the frequency of
describe diseases in Switzerland, promote research on rare diseases, and
enable networking between those affected and professionals. Important
Information about the SRSK and all the documents required for registration can be found here.

Register now!
Registration extended until 21th September 2022!
The 8th International Symposium on NBIA will take place from 13 to 15 October 2022 in Lausanne, Switzerland.
For three days, scientists and medical professionals from all over the world are invited to share their work and develop new strategies. Find out what's new in NBIA research! Share your experiences treating NBIA and join discussion boards!

You can find the current program here.

More information about the event can be found here.

In view of the lasting COVID-19 pandemic and respective restrictions for intercontinental travel, the organizing committee of the 8th International Symposium on NBIA and Related Disorders postpones the conference in  Lausanne/Switzerland to October 13-15 2022.

We keep you posted on this website with respective updates and information about the registration process.

We’d like to thank our supporting translators in the different languages:

For French: Elena Urbanovici and Dr. Paul Duvoisin

For German and English: Dr. Roland Jakob Roetne

For Persian: Miss Parvaneh Hojat خانم پروانه حجت

Due to the coronavirus epidemic, we had to change plans regarding the 7th international symposium on NBIA & related disorders which was planned to be held Oct 1-3, 2020 in Lausanne, Switzerland.

Instead of this symposium, we will hold a virtual meeting from Sept 30 – Oct 3, 2020. Speakers will be approached separately, and a website with more information and registration will be launched in August.

In addition, we rescheduled the live meeting in Lausanne to take place Oct 14-16, 2021. More information will be disseminated in due time.

We hope for your understanding!

We are about to rework our homepage. The contents in german, french and persian will soon be published.