Welcome to NBIA Suisse – the Swiss patient advocacy association

We are a non-profit organization that supports the scientific research aiming at finding a cure for patients suffering from neururdegeneration with brain iron accumulation (NBIA).

Our team at NBIA Suisse raises public awareness about this disease, supports efforts to better understand and diagnose the illness, and, finally, find innovative therapeutics for these young patients. To achieve our goals, we provide support and information to patients, families, clinicians, researchers. Further, we evaluate, initiate and selectively fund research activities in collaboration with academic centers, while we remain open to join efforts with industry partners across all subforms of NBIA disorders.

Please check our NBIA Suisse news page for ongoing and past activities.

Within our international network, we have the honor to host and co-organize the 8th International Symposium on NBIA.